F.I.R.S.T	This website will provide you with some basic information about ichthyosis as well as the programs and services F.I.R.S.T. has to offer.
Iktyos Sverige	Hjemmesiden til vores svenske søsterforening
Ichthyosis USA	This is website is brought to you by Chris and Laura Phillips.   This site is entirely privately funded as a public service to the ichthyosis community; no advertising of any kind is accepted.   This site strives to improve the ichthyosis community's resour-ces, raise awareness and support, and provide an easy-access meeting place.
Center for Små Handicapgrupper	Center for Små Handicapgrup-per (CSH) er en selvejende institution under Socialministeri-et.   CSH rådgiver og informerer om sjældne handicap/sygdomme.   Vigtigste målgrupper er men-nesker med sjældne handicap og deres pårørende samt fagfolk i bl.a. kommuner og amter.
European Network on Ichthyosis	Hjemmeside for de fælles europæiske iktyosis foreninger