F.I.R.S.T
		This website will provide you with some basic information about ichthyosis as well as the programs and services F.I.R.S.T. has to offer.
Iktyos Sverige
		Hjemmesiden til vores svenske søsterforening
Ichthyosis USA
		This is website is brought to you by Chris and Laura Phillips. This site is entirely privately funded as a public service to the ichthyosis community; no advertising of any kind is accepted. This site strives to improve the ichthyosis community's resources, raise awareness and support, and provide an easy-access meeting place.
Center for små handicapgrupper (CSH)
		Center for Små Handicapgrupper (CSH) er en selvejende institution under Socialministeriet. CSH rådgiver og informerer om sjældne handicap/sygdomme. Vigtigste målgrupper er mennesker med sjældne handicap og deres pårørende samt fagfolk i bl.a. kommuner og amter.
European Network on Ichthyosis
		Hjemmeside for de fælles europæiske iktyosis foreninger